UK remote
Support Caseworker - Referral Service
About this role
About the Role This is an exciting opportunity to join Muscular Dystrophy UK as a Support Caseworker at a time when we are delivering our ambitious 10-year strategy to transform the lives of people living with muscle wasting and weakening conditions. As part of our Care, Information and Advocacy team, you will provide compassionate, person-centred support to individuals and families affected by over 60 rare muscle wasting conditions.
Through structured conversations, you will help people identify their needs, access information and practical guidance, connect with peer support networks, and navigate relevant services, benefits and equipment. Working closely with colleagues, healthcare professionals and external partners, you will play a key role in ensuring people feel informed, supported and empowered to access the help they need at the right time.
This is a rewarding role for someone who is passionate about improving lives, building meaningful relationships and helping people overcome the challenges associated with living with a long-term condition. Main tasks and responsibilities: Manage incoming referrals, making timely first contact, gaining consent, and ensuring accurate record-keeping on the CRM system. Deliver structured, holistic conversations to understand the emotional, practical, social and information needs of individuals and families.
Provide high-quality, person-centred casework, supporting people at key stages of their journey and helping them access the right support at the right time. Develop and review support plans, working with individuals to identify priorities, agree actions and achieve positive outcomes. Signpost and refer people to relevant internal and external services, including peer support networks and other specialist sources of support.
Build positive relationships with healthcare professionals, partners and other stakeholders to ensure coordinated and effective support. Maintain accurate records, monitor outcomes and contribute to service evaluation, quality assurance and continuous improvement. Identify and respond appropriately to safeguarding concerns, risks and unmet needs, following organisational policies and procedures. Ensure all activities are delivered in line with GDPR, confidentiality, safeguarding and professional standards.